Much Germs, So Yuck!

So the video is live, Alex has a bacterial infection surprise, surprise, because sickness always runs rampant in this house. Took him to the doctor who was AMAZING. This guy took the time to earn his trust. Alex even opened his mouth and showed his ears to him. He gave the doctor a hug at the end, which is not something he does with people. Affection is not his thing having ASD.

I’ve decided to switch doctors to the one we saw. He versed me better in the short visit with him than the two doctors I’ve seen in the last two years have. There is a lot going on with me but I will save that for another day. For now I’ll just say there may be some serious items on the horizon for me and my own health some of it having to do with my thyroid issues that cropped up in 2015 around Christmas for those of you that have been long time readers. That is never anything new though.

 

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Long Drive, Check out this amazing cover!

 
Title: Long Drive
Author: Jessica Florence
Release Date: Jan 9, 2017
 
 
 
There is a long road in everyone’s journey in life.
For some people, it’s a way to get from one place to another.
For others, it’s a search for one’s purpose in existence.
For me, the road was where I could find peace.
When everything in my life had shattered, I turned to the road.
And that’s where I met him.
Killian Lemarque.
A beautiful truck driver, and my salvation.
One month on the road together is the deal, and when it’s over, I will have hopefully figured out what I’m going to do about my torn reality.
But sometimes the road can change everything.
One Month. One Truck. One Long Drive.
 
 
 
 
 
Jessica Florence, Kaleidoscope of Romance
 
Author ❤ PotterHead ❤ Movie Geek Extraordinaire.
 
Writer of Surviving Valentine. The of The Heart trilogy, Evergreen,Lights of Scotland Series, and The Final Love series.
 
When she's not writing her next invigorating story. You can find her running her own business, and spending time with her husband and daughter in southwest Florida.
 

Okay so those of you that don’t know, I LOVE to read. I came to know Jessica by happenstance and this book of hers is something I have watched transform and grow. This story is one after my own heart as the wife of a truck driver. The subject matter is like nothing you’ve ever seen. Jessica is a fantastic novelist with such a talented and guided hand, her other works are certainly worth checking out as well. Do not forget to stop by her facebook and other social media outlets as well.

Trust me, you guys do not want to miss this book. Having gotten some delightful little snacks myself, I am chomping at the bit. I already have my preorder in. DON’T HESITATE, especially you trucker wives out there. This book is so unique. This is nothing like the weaksauce romance novels with the same old plot lines. This is new, fresh, and AMAZING. Give it a read and you won’t regret it, I cannot wait to see what the ending has in store. With a wonderfully strong female in the lead role and a hunky, hard working trucker as the counter part, this story has captured my heart from go. This cover is GORGEOUS. Stay tuned as sometime soon I’ll have more details to share with you about the book!

But if you never try you’ll never know, Just what you’re worth

The other day some friends and I played a game. We listed off songs that we could listen to for the rest of our lives. One song only, forever. I of course had trouble choosing and ended up picking three. Music has always been the mainstay of my life. One of my friends chose “Fix You” By Coldplay. I listened to all the songs chosen and this one resonated deeply with me.

As of late there has been a lot filtering around with Alexandr’s care that has been incredibly difficult, and I have found it so hard to muster the strength and tenacity in myself that I typically have. that strong will and push forward attitude I always seem to have has been so rocky. perhaps it has been because of some of my own personal struggles but whatever the reason my resolve is being tested by everything that is facing us at the current moment.

Alexandr entered this world under the most spectacular of circumstances, at thirty three weeks, and spent a month in the neonatal intensive care unit. Since then it’s been a non-stop roller coaster ride. In the last year we’ve spent a large amount of time in therapy four times a month. We have had progress, and we have had setbacks. Anytime we make headway I feel like we do an about face and it’s two steps in reverse.

While other parents can speak to their children who are about to turn three, I cannot. Instead we communicate mostly through hand holding and pulling. I have spent the last few weeks struggling with what therapies to choose for him, what will serve him best, how to get them for him, and how to move forward.

Progress.

That’s always the word of the day, how to make progress. How do I get through to our son?

I told my sister the other day, who understands exactly how I feel, that I feel as though it’s like being locked outside a house with your child inside, staring in a window from the cold. You cannot get in until they can figure out how to open the door.

Autism is a fickle thing, and though he may not have an official diagnosis yet, that’s the label that we’ve all put on it at this point, his therapists included, and it’s something that over time, I’ve had to come to terms with.

Fix you.

That’s exactly how I feel.

I wish I could fix it. I want to fix it. I want to make it all okay for him, and make the pain go away. I don’t want my son to be upset when he is around too many people, too much light, sound, or just general chaos. I want him to be able to go from place to place without being so upset he can barely breathe. I want to take all his pain and anxiety and bear it on my own shoulders. Give it to me, and make him okay.

Today is world prematurity day and I was reminded once again how precious he is. Despite all of this, and all of our struggles, I have taken the last few days to step away, away from all of it, the appointments and therapist evaluations. The upcoming school placement (he starts preschool in February). The developmental pediatrician evaluations and the figuring out what to do about this child psychologist business, and I stopped to enjoy my son.

Sometimes I get so caught up in all of the need of development. I forget to just slow down and enjoy him as he is now. I focus so much on what the next step is, that I forget to take in the now.

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 Sometimes we have to just let go of what we think we can do, to find out what we really can do, and be. We have to get out of our own way. I feel like I spend so much time at times TRYING to be the best parent that I can, that I miss just playing in the dirt with my son. I should let go more often.

In the past two days I’ve been able to take down the barriers in my house and stop using the baby gate, and bring him a little more into my world. He has his own space in our office at that little desk of his own. He is learning a little more about boundaries and I think he’s actually understanding it a little bit, because I’ve given him that opportunity. We both have been feeling sick as well and for the first time since he was seventeen months old he wanted to sleep in my bed with me, and I haven’t gotten those kinds of cuddles since he was that age either. I forgot what it was like to have him need me that close. I cried my eyes out after he fell asleep. Something he will probably never know or understand, but I needed that from him so badly.

I just needed to try, to let myself know what not only I was worth, but what he was capable of.

I think we both needed what came out of the last few days.

There is no fixing that needs to be done in this house I have always known that, and while I may always want to make him feel better because I’m his mother, and will always want to take that weight off his shoulders, I’m learning every day to handle things a little better. It is all a process, and we learn from each other.

 

I hear voices all the time…

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What is it that defines us? Who we are and the choices we make? We all have paths in life. Roads we travel down, sometimes dirty, rocky, or even muddy. Other times we are met with smooth pavement under the tires. I feel we all are presented with obstacles and detours and how we decide to handle that is part of what it is that writes the ultimate biography of us. Who we are and the nuances of our personality.

I like to think that I am a strong person, one who has not only been off-road, but lost with a broken axel and busted mud tires more times than I would ever want to admit, even to myself. Every time I have found my way back to life. I mend the frame and drive on. Much like an old beat up Dodge that has seen better days but still runs and drives, I am here. Despite the fact that this old diesel engine is a bit knocky and tired.

I know I know, that is a lot of parallels to roads and trucks, but this is me we are talking about.

Lately I have had the voices of those around me, those who are so important, in my head. I have had a lot of things on my mind as well as many challenges to face. It has brought to the forefront some people around me who I don’t think will ever change. It has also reminded me that I do have the support of a few people that I could never trade. My wonderful husband, my amazing sister and brother-in-law, and even, at times, my grandparents down south. Though my phone calls to them are often short, and somewhat cooky, I will always be thankful for my grandmother and her silly southern love. I will never forget how much love I have been given from them over the years. My sister is a driving force in my world, I am ever thankful for technology and the ability to keep up with her every day when we cannot see each other.

I may not be perfect, and I have certainly been through a lot. I have become so much more aware of the truth in the world, and about people.

So what is it that makes us who we are? Is it those around us? The things we see? The way we were raised? I believe it is in the choices we make every day. You are who you choose to be. If you want to get back on the pavement, you need only turn the wheel, and start getting out of the mud.

All my friends are heathens, take it slow…

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I’m not exactly anyone’s idea of a “lady”. I’m not going to say I every really tried to be. I was always the one who avoided the color pink like the plague as a child and swore off dresses. I was climbing trees with and riding bikes with the boys.

I had a conversation with an old friend, Richelle today. It was a short catch up and chit chat about random things in which purses and shoes came up. Little known fact, I have become an incredibly large shoe addict. I am going to confess it outright I have fallen into this guilty catagory now. I have more shoes than I have room for or occasions in which to wear them to. When we buy our home, which we are shooting for hopefully next year, we are going to honestly have to plan for a larger closet to accommodate my clothes and shoes now lol.  I also have a hard time passing up a good deal on a new pair even though I have so many lol. I’ve also noticed that I’ve taken up more girly hobbies as of late. I certainly use makeup more often, I regularly carry an ACTUAL purse instead of one of those crossbody bags that barely passes for one, and find myself shopping for multiple ones as a guilty pleasure. I wear skirts and dresses and love it. I enjoy accesories and have an extensive collection of girly things. I mentioned that I even have a pair of tennis shoes that are primarily pink now. She flattered me by saying that I was most certainly girly, if not adorable in our younger years anyway.

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As you can see my style was quite that of I LIVE IN JEANS AND TANK TOPS, throw in a hoodie for good measure and a t-shirt here and there with a band on it and you had my style lol. The other picture is from today. I’d like to say I’ve grown up, and changed, while I still wear t-shirts of course I’m not exactly what I was back then. I am pretty sure my face is stuck in some time warp, because I still look like a baby LOL. I’ll take it for as long as my body decides to let me keep it. I may be falling apart on the inside but I still look eighteen sooo, eat that chronic illnesses! ❤

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This did get me to thinking about something else, as today marked a very important day, as did yesterday, in my personal history, as well as our national history.

How often do we realize what we mean to others? I spent so much time of my life worrying about others accepting me, saying the right thing, doing the right thing. I was always so incredibly insecure and awkward. Afraid of losing those around me. So very few of the people around me even knew that but I was so afraid of them turning on me or their friendships with me being conditional that I was fearful of getting truly close to anyone, and in some cases I still am. I stopped to ponder today if some of those around me back then ever felt the same. Maybe I was one of those people to them? Maybe I was the one they looked up to? Maybe, just maybe I was one in their life whose opinion really mattered to them.

I feel like a lot of us let our insecurities hold us back, from wearing what we want, talking to those around us, or letting in people. You never know. You could be someone’s inspiration, or foundation. That friend you are so scared to lose because you are afraid of their opinion, simply because you think so highly of them? You may be that person to them. Never underestimate what you mean to someone. Live life with as little fear as possible. Go out and reach for the things you want. I am thankful for my husband Zane because I spent a large portion of my life surrounded by people who told me I couldn’t or shouldn’t do things because I was “too short” or “not quite in shape enough” or “couldn’t pull it off” and I let it hold me back from things that were really part of me anyway.

For the first time in my life I am starting to experience it unbridled. I try very hard to keep my fear of rejection or judgement in check, and do what I feel happy doing, so long as I am not hurting anyone else in the process, or myself. Honestly? We only get one spin on this Earth, and mine may very well be a short one. I want to show my son Alexandr he shouldn’t be afraid to be himself, and I never want to regret the things I didn’t try or do, the people I didn’t let in, or that I wasn’t there for.

Also, have a song, because it’s stuck in my friggin’ head.

A Little Past Little Rock,..

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Today finds me in somewhat good spirits despite the fact that I could not sleep no matter how hard I tried.

I have been incredibly lonely as of late and missing Zane sorely, I know I’ll adjust with time but it seems like life is hell bent on throwing as many little challenges as possible to annoy and weigh me down in his absence. I’m doing the best that I can but DAMN, really? Everytime I turn around something is breaking or falling apart or there is something else I have to fix. Ugh. Like Alex throwing a toy car, and furniture moving pads into the hopper/grinder of the cat genie after we JUST got it fixed -.-

In other news, I finally made it to level 10 in Pokémon Go, so that’s a thing.  It’s been a fun distraction and I’ve become every so slightly obsessed with it lol. I’ve been trying my best to find things to distract myself and throw myself into when I’ve been feeling up to it, though I haven’t been feeling well. I’m pretty sure I’m coming down with a cold of some sort, which is just fantastic. I have had multiple youtube channels over the years, and I have always talked about making one for singing. I started one for pony music for the My Little Pony reboot show a while ago which drew some attention but I wanted something that is a little more widespread. Intro my new channel. This will encompass Vlog posts as well as singing and anything else I feel like posting on it! I hope to one day get a handheld camera and even do some cooking videos.

Here is my latest though I did cover “Ours by Taylor Swift the other day. Please if you have any comments or suggestions let me know. I have been trying to pick good songs to do. Lee Ann Womack was someone I really loved as a young kid and I feel like our voices match well. Who knew I’d share her name someday huh?

Don’t hold a grudge or a chip and here’s why…

I know you got mountains to climb, but, always stay humble and kind….

So many things have happened since my birthday a few short months ago, and it’s almost too much to catalog. I can’t even really go through it all, but suffice it to say, between multiple trips to the hospital, a stint in ICU, and in general more health issues than I care to admit to myself, I seem to have stabilized somewhat. Toward the end of this month I finally make my way to the Rheumatologist I have been waiting to see since last year. With any luck this will get us some more real answers, unfortunately it may create more hiccups.

There have been plenty of new developments, Zane came home for multiple months, and is now back on the road again, back to doing what he’s always been good at 😉 I know he’s married to me, but that blacktop is his second home, and I’m okay with that. There has been so much more that’s happened and I could go on forever about everything that’s developed over the last few months. Let’s just say I see so much coming on the horizon. I will meet it all with my head held high as I always have, and with my hand held by those whom I love. Zane has been such a driving force for me this last year and I can’t believe how much I have changed being with him.

They say the world and the people in it can change you, and that’s certainly true. I think he has changed me more than he will ever know, but more than that he’s helped me find me again. It’s like settling back into the earth that I once was. I’m comfortable in my own skin again. I don’t feel like I have to pretend to be someone I’m not. No need to impress or keep appearances for anyone. I can be as raw as I feel I truly am. I can sob and let my emotions as free as they are. If I honestly cannot handle the day and the cross I bear is to heavy, he will take it off of me and hold it for as long as I need, and hold me in the meanwhile. Even from hundreds of miles away. I have never met someone so kind and gentle, nor someone so caring. I cannot ever see myself anywhere else than in this life.

Everything lately has been so heavy on me too, there has been so much difficulty, so much sickness and pain, one bit of bad news after another. One unanswered question after another. I feel like it’s a constant spiral some days.

Alexandr continues to be my guiding light though, every day I awake to his sweet smile and “Hi!” I get to look into his beautiful face and get kisses and hugs, I play cars and teach him things, he puts bugs in my lap and we play in the dirt. I spend too much time in the sun, and I wouldn’t trade and ounce of it.

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I really do wish I could see the world through his eyes, the wonder he must feel at every little thing he sees. He has been making great progress in therapy, his favorite color is orange and he is doing great at saying them now. He can now say “Juice, eat, and bite” he knows what they all mean and uses them respectively to get what he wants. He also says “Thank you” and “Hi” he is starting to call me “Moma” on occasion, which is rare, but just about makes me cry when it does happen. We had a regression of his verbal skills early on and “mama” dropped from his vocabulary completely after being around for a very short time, since then he has not referred to me by a word at all. I’m very touched he is starting to use it again and I cherish it when I hear it. Sometimes it wears on me with how hard I work to not hear it. I love him so very very much, he is my everything, my soul even in some ways. To have him not say things like “love you” or “momma” is hard sometimes. I know that some people who have children who are somewhat non verbal, autism spectrum, or special needs will understand this. It can be difficult when they cannot reach out to you through words.

I try to remind myself that it’s not my fault, nor is it his. It may never be his way, and that is okay. I know that he loves me, and appreciates me. So when he does hug me, or kiss me, I just appreciate it that much more. I also do not scold myself for feeling jealous or upset when I sit at the park and see mothers of other two year olds carry full conversations with their children, where they say “I love you so much mommy!!” I remind myself it’s okay to hurt. I’m allowed to feel that way, just as I was allowed to mourn my pregnancy, and feel pain over the things that I lost in his infancy. I will mourn a great many things as he grows, and I will not allow him to feel that any of it is his fault, nor will I EVER let him feel like he is anything less in this world even if others want him to feel that way.

I know that he will have challenges. I know that his growing up will not be easy, but I’ve always grown to know that being his mother, or being a mother at all, is something that takes more than I ever imagined, it takes every part of your being and then some. I will spend the rest of whatever life I am granted making my son know that his mommy loves him and has every faith in everything he could ever be and will be in this world and will stand behind him 100%.

I’m not entirely sure when I started writing this that it had a direction, but perhaps I just needed to talk a little bit, and get out some things that have been inside me lately, and this being my platform, and my soap box, I pour my heart out here.

The truth is, I love my family. I love my son more than myself, and I love my husband more with each day that passes, and as it sits I see only better things on the horizon for all of us. Like I’m being embraced by a warm hug most days, even if some days are hard, nothing breaks through that hug.

Thank you to those of you who share in reading about my family and my journey through life here on my blog.

Till next time… Always be Humble and Kind.